Advances in Genetics Research and Technologies: Challenges for Public Policy : Hearing Before the Committee on Labor and Human Resources, United States Senate, One Hundred Fourth Congress, Second Session ... July 25, 1996, Volume 4U.S. Government Printing Office, 1996 - 87 páginas |
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Termos e frases comuns
American based on genetic benefits bill biotechnology BRCA1 breast cancer cancer susceptibility clinical Collins colon cancer Committee concerns confidentiality Congress coverage develop diagnostic DNA samples ELSI employment ensure ethical family history federal future disease Garber gene genetic conditions genetic counselors genetic discrimination genetic information genetic privacy genetic research genetic testing going Group guidelines health insurance health insurance reform hearing hereditary cancer Holtzman Human Genome Project Human Genome Research identify important individuals informed consent insurance companies Kaiser Permanente laboratories laws legislation Madam Chairman McGoodwin medical information medical records misuse mutations National netic testing OncorMed OncorMed's ovarian cancer Pathologists patients physicians potential PREPARED STATEMENT prevent prohibit prophylactic mastectomy public policy questions risk Rothenberg scientists Senator Domenici Senator FRIST Senator Mack sequence susceptibility testing Task Force test results testing for breast Thank therapy tion
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Página 80 - It is not enough that you should understand about applied science in order that your work may increase man's blessings. Concern for man himself and his fate must always form the chief interest of all technical endeavors...
Página 73 - Its 75,000 members include board certified pathologists, other physicians, clinical scientists, and certified technologists and technicians. These professionals recognize the Society as the principal source of continuing education in pathology and as the leading organization for the certification of laboratory personnel.
Página 80 - ... shall be a blessing and not a curse to mankind. Never forget this in the midst of your diagrams and equations.
Página 51 - Genetic information means information about genes, gene products, and inherited characteristics that may derive from the individual or a family member. This includes information regarding carrier status and information derived from laboratory tests that identify mutations in specific genes or chromosomes, physical medical examinations, family histories, and direct analysis of genes or chromosomes.
Página 50 - Cancer (NAPBC) and the Working Group on Ethical, Legal, and Social Implications of the Human Genome Project (ELSI) for both state and federal policy makers to protect against genetic discrimination: 50 2.
Página 47 - As our knowledge grows about the genetic basis of disease, so too does the potential for discrimination and stigmatization based on the information contained in our genes.
Página 79 - Council and to other appropriate government entities regarding the following matters: 1) the appropriateness of departmental, agency, or other governmental programs, policies, assignments, missions, guidelines, and regulations as they relate to bioethical issues arising from research on human biology and behavior; and 2) applications, including the clinical applications, of that research.
Página 9 - Law and the founding director of the Law and Health Care Program at the University of Maryland School of Law.
Página 8 - States, we have completed the first year of operation of the National Center for Human Genome Research at the National Institutes of Health (NIH), now the largest single funding source for genome research in the world.
Página 47 - Project (ELSI) for both state and federal policy makers to protect against genetic discrimination: 1 . Insurance providers should be prohibited from using genetic information, or an individual's request for genetic services, to deny or limit any coverage or establish eligibility, continuation, enrollment or contribution requirements. 2. Insurance providers should be prohibited from establishing differential rates or premium payments based on genetic information, or an individual's request for genetic...